Case Studies Submissions Form

Please populate the following submission fields to the best of your ability. Our editorial team will return with questions or clarifications where appropriate. If you would like to discuss your project with the team before filling in the form below, please feel free to get in touch through email (info <at> magnacartafordata <dot> org) or on Twitter @dataethicsIre. You will notice from our published case studies that we do not use the names of individual researchers in the case studies.

This project is intended to provide useful source material for a range of researchers across different disciplines, as well as media and the general public. Please keep your language simple and jargon free.

Project

When did the project commence? Has it reached its conclusion?
Some researchers like to use this section to give some context to the research project (eg. why it is important research at this time? What is the broader political, commercial, technological or public interest context of the work?)

Ethical Questions

This is a chance for you to reflect on ethical issues that have arisen from the work under discussion. While you may have adhered closely to ethical guidelines provided by your academic institution, funding body or commercial sponsor/partner, you and your team may have encountered issues not covered by any framework or legislation. Consider ethical issues under the following headings:

  • CHALLENGES: Did you encounter an ethical challenge that was not covered by the guidelines provided by your academic institution? Did you find a way to deal with that challenge?
  • ANOMALIES: Have you been able to identify ethical anomalies in your field?
  • PROJECTIONS: In the course of your research have you been able to anticipate ethical challenges that are likely to arise in your research field, not as a specific result of your research, but perhaps engendered by the work you and others are involved in?
  • OPPORTUNITIES: In the course of your research have you been able to identify potential technological solutions to ethical issues that have arisen or are likely to arise in your research field in the future?

Please categorise your responses as follows, providing as many (or as few) topics as appropriate.

  • Heading ( eg. Consent of Minors)
  • Short description (eg. Initial consent for an adolescent health project is provided by parents with agreement from their children. If the child does not agree, parental consent is voided. What if any recourse is available to minors who, upon reaching the age of 18, wish to withdraw consent for their data to be used? If the child can withdraw consent, what does that mean for the data already collected?
  • Key question: Try to encapsulate the issue in a question or questions (eg. Key Question 1. What, if any, recourse is available to minors who, upon reaching the age of 18, wish to withdraw consent for their data to be used? Key question 2: What happens to the data already used as part of the research if consent is withdrawn?

(eg. Parental Consent, Consent of Minors, health data, adolescent health data, Right to be Forgotten)

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